Woman with porcelain skin, shared a special photo

She suffers from a rare disease – scleroderma

Женщина с "фарфоровой" кожей поделилась необычными фото

27-year-old Shirley Alvarez of the U.S. new York has created an image of “tragic doll”. She suffers from a rare disease – scleroderma.

The disease was diagnosed when Shirley was 9 years old. Autoimmune disease affected the whole body, including blood vessels. Several months later, she was in a wheelchair. The image of the “tragic doll” helps to Express her feelings.

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

The woman-doll showed their pictures. Photo: Facebook

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“The worst moment of my life there was a time when I was diagnosed. I wanted to be independent and active. I wanted to dance. But I was helped to dress in the morning and fed with a spoon. I understand that I will not be able to dance anymore,” recalls Shirley.

At 16 years of age Shirley tried on the image of goth. Carried away by the music and fashion of this style.

“I always felt trapped in the wrong body. I think the way doll best embodies what I feel. I may have a somewhat fragile appearance due to illness. But in this image there is a huge inner strength and I want to show it” – she adds.

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Shirley also suffers from Raynaud’s syndrome – a condition that is accompanied by spasm of the arteries and decrease blood flow to the extremities. It often occurs with scleroderma.

“I looked at fashion as a form of art. She strengthened my confidence. I knew I can’t dance like I used to. But started dancing with his sister, using the cart for support. I felt no fear,” – says the American.

Recall that a rare genetic disease robbed the entire family of feelings of pain.

Женщина с "фарфоровой" кожей поделилась необычными фото

Женщина с "фарфоровой" кожей поделилась необычными фото

Женщина с "фарфоровой" кожей поделилась необычными фото

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